Note this is a video recording of an online meeting conducted using the Zoom.us platform. Inevitably such recordings suffer a little in terms of their production values because of the internet connectivity and quality of webcams. Despite that, they allow us to provide additional valuable insights in to the MedComms business and we can involve a wider range of speakers who can participate from the comfort of their own desks, wherever in the world they are.

In this webinar, we are joined by Emma Bagshaw, Mark Larkin and Sam Llewellyn from Vitaccess who discuss the lifecycle of creating collaborative digital patient registries and taking them through to the publications. Discussion is based on the MyRealWorld MG study, which measures the impact of myasthenia gravis on patients’ daily lives, as a case study. The panel also includes Fulvio Baggi, Director of The European Myasthenia Gravis Association (EuMGA) and member of the Scientific Advisory Board for the MyRealWorld MG study. This digital study was sponsored by argenx, and co-created with patient advocacy groups and key opinion leaders from 9 countries. The panel explores the publication output which helps give insight into the patient’s reality of living with MG. And we answer questions from the audience.

It should be of interest to anyone working in and around MedComms.

Recorded 22 September 2021 as a MedComms Networking webinar. Produced by NetworkPharma.tv

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Emma’s LinkedIn page is at https://www.linkedin.com/in/emma-bagshaw-893a70b7/

Mark’s LinkedIn page is at https://www.linkedin.com/in/marklarkin-vitaccess/

Sam’s LinkedIn page is at https://www.linkedin.com/in/samuelllewellyn/

Fulvio’s LinkedIn page is at https://www.linkedin.com/in/fulvio-baggi-8765b917/

You can find out more about Vitaccess at https://vitaccess.com/

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We are building a library of free webcasts and other video content for the global MedComms Community and others at http://www.networkpharma.tv and we’d welcome your suggestions for new content.

[For the avoidance of doubt: this video is intended to be freely accessible to all. Please feel free to share and use however you like. Cheers Peter Llewellyn, Director NetworkPharma Ltd and Founder of the MedComms Networking Community activity at http://www.medcommsnetworking.com]