Jon Morton, Agency Lead at Comradis (an AMICULUM agency), explains what life in medcomms means at Comradis, with its focus on rare diseases.

Recorded 3 August 2016 at a MedComms Networking event in Oxford. Produced by NetworkPharma.tv

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ABSTRACT:

Comradis work exclusively on rare diseases and uncommon cancers; the name is a play on communication (commercialisation, community) in rare diseases. The agency was created in 2013 to help tackle the persistent challenges facing the rare disease community, with the recognition that the field of rare diseases required a different approach to that of mainstream medical communications agencies.

Until the early 1980s, the term ‘rare disease’ was not widely recognised. This changed in 1983, when a group of families in the US founded the National Organization for Rare Diseases (NORD), and was instrumental in helping to pass the Orphan Drug Act 1983, which created financial incentives for the development of treatments for rare diseases. Similar legislation subsequently spread around the world; orphan drug approvals started to mushroom, and rare diseases are now the fastest growing sector of the biopharmaceutical industry.

Orphan drug development faces considerable challenges. Rare diseases are often genetic; they have complex pathologies, and they are often not well understood and so poorly diagnosed. Lack of political support compounds a difficulty in gaining regulatory approval, and the high costs of development and treatment form further barriers to patient access to treatment. Comradis have built expertise in working with industry and patient communities. As part of the AMICULUM group, Comradis can call on experts in regulatory strategy, market analysis and commercialisation and market access. Comradis are active members of the rare disease community, as is reflected on their website.

Written by Penny Gray, Freelance Medical Writer

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We are building a library of free webcasts, like this one, for the global MedComms Community and others at http://www.networkpharma.tv and we’d welcome your suggestions for new topics and speakers.

Full details of this MedComms Networking event are at http://medcommsnetworking.com/event77.html

Jon’s presentation (PDF format) is at http://medcommsnetworking.com/presentations/morton_030816.pdf

Jon’s Linkedin page is at https://www.linkedin.com/in/jonathan-morton-88717110/

More about Comradis can be found at:

Web: http://www.Comradis.biz

More about AMICULUM can be found at:

Web: http://www.amiculum.biz

You’ll find lots more information about starting a career in MedComms at http://www.FirstMedCommsJob.com

Filming and technical direction by Mario Crispino, Freelance Cameraman & Editor

[For the avoidance of doubt: this video is intended to be freely accessible to all. Please feel free to share and use however you like. Cheers, Peter Llewellyn, Director NetworkPharma Ltd and Founder of the MedComms Networking Community activity at http://www.medcommsnetworking.com]